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the eric update - day 557: the future of odin's eyesight still unclear.

today it was time for another eye exam - this one provided by the same local organization that performs some but not all of his developmental assessments and also sponsors his preemie play group.

i must admit that we were a little disappointed with the home exam because it didn't answer the question we were hoping to answer - whether or not he is legally blind.

but the nice examiner did measure quite a few other parameters and verified that in all other aspects his eyesight and general health is astonishing. she was particularly amazed and to hear that he had over 1500 "burns" in each eye and yet didn't seem to be suffering any adverse affects ( loss of depth perception or peripheral vision ) from the scar tissue that is necessarily created from the eye surgery itself. and she commented that his "near field" vision was almost certainly perfect ( e.g. he was able to repeatedly pick up incredibly small individual "sprinkles" from a small pile in her hand.

and it's perhaps promising that although she agreed that the doctor who performed the exam is very good at what he does, she also thought it was unusual to have such a dramatic shift in vision over his last two exams ( from -1 to -5 ). i guess we'll just have wait patiently for the next 4 months until his next "official" exam to get some clarity.

we spent some time outdoors intentionally walking around on uneven and cracked surfaces because she wanted to see how he reacted to relatively unfamiliar terrain; she did point out that he doesn't do as well walking up or down inclines and steps up high when he approaches a large groove or crack in his path which might mean that he has a difficult time discerning depth changes due to vision loss.

or it might also mean that he's a relatively new walker and not really used to walking on rocky, cracky, uneven terrain.

hi. ho. ironically ( or not, i guess ) lately he's been enjoying putting on a pair of mamma's old glasses.

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1/12/2006 07:00:00 PM 1 comments

1 Comments:

Ugg, I'm so sorry to hear that you didn't get the answers you were looking for. I must say though, he's just darling in those glasses. I'm amazed everyday at how wonderfully Odin is doing.

And I also wanted to pass a little note on to you, but lost your Email Addy when we switched email systems. I finally opened my webstore that we discussed so long ago. We have a small gift for Odin, but you have a couple of customization options. Please send me a note, and we'll work out the details.

Kat

By Blogger Katra, at 12:22 AM  

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"it is hard to be brave," said piglet, sniffing slightly, "when you're only a Very Small Animal." rabbit, who had begun to write very busily, looked up and said: "it is because you are a very small animal that you will be Useful in the adventure before us."

the complete tales & poems of winnie the pooh

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this site chronicles the continuing adventures of my son, odin, who was unexpectedly born on the fourth of july at 25 weeks gestation, weighing 1 pound 7 ounces.

he's quite a fighter and you can always send him a postcard to the most current address listed here if you're inspired by his adventures. see the postcard project/google maps mashup to see a map of the postcards.

if you're new, you can browse the archives to catch up. and don't forget to watch a few movies that i made while we were in the neonatal intensive care unit. or if you want the abridged version and you can find a copy, you can read about his adventures in the november 2005 issue of parents magazine.



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