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ex machina

ugh. harper's epilepsy is slowly and steadily getting worse. while he used to go 60 days without seizures on one medicine, he's now maxed out on two medicines and having clusters of seizures over several days - every week or two.

unfortunately, he's also started getting lethargic and refusing food, which is a bad sign. today, he had a grand mal while standing at the top of basement stairs and tumbled, seizing the entire distance, down the steps. luckily, he doesn't appear to have any broken bones, but it looks like we're going to have to make some tough decisions soon.

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8/03/2002 04:50:00 PM 0 comments


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"it is hard to be brave," said piglet, sniffing slightly, "when you're only a Very Small Animal." rabbit, who had begun to write very busily, looked up and said: "it is because you are a very small animal that you will be Useful in the adventure before us."

the complete tales & poems of winnie the pooh

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this site chronicles the continuing adventures of my son, odin, who was unexpectedly born on the fourth of july at 25 weeks gestation, weighing 1 pound 7 ounces.

he's quite a fighter and you can always send him a postcard to the most current address listed here if you're inspired by his adventures. see the postcard project/google maps mashup to see a map of the postcards.

if you're new, you can browse the archives to catch up. and don't forget to watch a few movies that i made while we were in the neonatal intensive care unit. or if you want the abridged version and you can find a copy, you can read about his adventures in the november 2005 issue of parents magazine.

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