snowdeal.org > ex machina: the eric update - day 69: footie jammies! live strong! pulmicort?

ex machina

the eric update - day 69: footie jammies! live strong! pulmicort?

today was the kind of day where the big news was that eric wore big boy clothes with footies! we got the outfit from a friend of kris' ( hi beth! ) who gave us a bunch of preemie clothes that have come in mighty handy.

while he's been able to wear open-footed street clothes for a few weeks, the staff wanted to wait until he was even more stable before we bundled him in footie wear. i thought maybe he wouldn't like having his feet covered, but he didn't seem to mind it at all.

you may have noticed that kris is wearing a yellow "live strong" band from the lance armestrong foundation.

our friends, adam and johanna ( yes, the same adam and johanna who seem to be travelling around the country and sending odin postcards. thanks! ), sent us almost too many bands to count because they thought the "live strong" motto was perfect for little odin. we think so too. we got the bands the other day and i was holding off taking a picture until i could properly "set up" a shot with all the bands surrounding eric, but kris foiled my evil plan.

at the end of the day, eric's neonatal nurse practitioner told us that they were thinking of giving eric pulmicort to help give him a boost off his oxygen. we haven't had any time to research the risks and benefits of pulmicort, so if anybody has any opinions, i'd like to hear them.

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9/11/2004 11:48:00 PM 4 comments

4 Comments:

My grandson will be 3 in October, and has been on pulmacort (in the winter months only) for two years now for his asthma, and it helps him tremendously when he gets a cold. I don't recall that he has had any side effects. He gets it via a nebulizer. Eric looks so cute in his new clothing. I am glad to hear he is doing so well. Best wishes, Rebecca from Ohio

By Anonymous, at 2:50 PM

Hi there! I have truly enjoyed reading the updates on your son. And I love those pictures. Our best wishes to you all. He certainly is a little fighter. My youngest grandchild spent 12 weeks in the NICU. She was born last March but wasn't due until June. She turned 6 months old yesterday & is doing great. I too have started a little Blog about her. It's not as fabulous as yours, (I'm still trying to figure out how to post photos) but if you get a chance, please check it out. I have posted a few pictures of her on a different web page. Take care, Cathy & Family
http://mycowcorner.blogspot.com/
http://home.comcast.net/~cathycow/wsb/index.html

By grammamoo, at 9:38 PM

Kyle is on the "puffer/inhald" version of Pulmicort - called Flovent (distributed by another company). It's a steroid inhaler that helps dilate the air passage ways and the lungs.

Here is a generic link with both drugs mentioned (note that in this link they are using the inhaled pulmicort, not the neb version):
http://my.webmd.com/hw/health_guide_atoz/hw165533.asp?lastselectedguid={5FE84E90-BC77-4056-A91C-9531713CA348}

It is VERY important to note, that there a risks with getting this in his eyes - which is why our drs have us on flovent puffer instead of Pulmicort Neb (at home). We follow his morning and evening nebs with 2 puffs through an inhaler tube for infants. It works very well for him, and ensures that we are able to keep his steroid dose down. The upside of this type of a steroid, is that the typical side effects are not there - and it directly targets the throat and lungs.

By Katra, at 9:39 PM

Ricky and I (he for cystic fibrosis and me for asthma) have both been on Pulmocort and have never had problems with it. We have both also been on Flovent.

By Unknown, at 2:40 PM

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“"it is hard to be brave," said piglet, sniffing slightly, "when you're only a Very Small Animal." rabbit, who had begun to write very busily, looked up and said: "it is because you are a very small animal that you will be Useful in the adventure before us."”

the complete tales & poems of winnie the pooh

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this site chronicles the continuing adventures of my son, odin, who was unexpectedly born on the fourth of july at 25 weeks gestation, weighing 1 pound 7 ounces.

he's quite a fighter and you can always send him a postcard to the most current address listed here if you're inspired by his adventures. see the postcard project/google maps mashup to see a map of the postcards.

if you're new, you can browse the archives to catch up. and don't forget to watch a few movies that i made while we were in the neonatal intensive care unit. or if you want the abridged version and you can find a copy, you can read about his adventures in the november 2005 issue of parents magazine.

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