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the eric update - day 93: impending exit from the nicu?

we haven't heard any concrete dates about when he might be ready to go home, but his neonatologist told us today that they are going to consult with surgeons and various specialists and come up with a plan on thursday morning! i don't think he'll be going home on thursday, but they said that we'll have a much more concrete idea on thursday evening about what steps need to be taken in order for him to be discharged! if everything continues to improve, i think we'll be busting out of the nicu, very, very soon. of course, we're vigilent of falling victim to the the curse of the nicu and we're careful to not ever mention that he might be coming home when we're by his bedside. all the nurses are familiar with the curse and completely understand when we spell out h-o-m-e as we're discussing the issue within earshot of odin .

it might have been a little bit of an overstatement to say that his reflux disappeared. every so often he lets us know that he's still refluxing, even though he's sending very little milk out his nose or mouth. despite the occasional desats, he's still doing quite well - although his doctors admit that they don't know exactly how to account for his speedy recovery when just last week it seemed that he was a good candidate for surgery.

when pressed to give the odds, his doctors still think that he has a 30-40% chance of needing the nissen and g-tube surgeries, although obviously they're getting confident enough to begin the discussions about when he might be able to come home. despite the fact that the odds are increasingly in favor of not performing the surgeries, the doctors indicated that they'll probably send him home with his inguinal hernia unrepaired on the chance that he'll eventually need the hiatal hernia, nissen and g-tube surgeries, thus diminishing the chance of needing to put him on the ventilator several different times ( in other words, they'll hedge their bets and vent him once and perform whatever surgeries they need to perform all at one time ). also, despite being caffeine free, they said that they will probably send him home on a "home monitor", since they're not sure if his reflux will return after being sent home.

since it's impossible to know if his heartrate is fluctuating and he's desatting when he's not showing obvious signs of refluxing, i have to admit that i feel a little more secure knowing that he might be coming home "wired".

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10/05/2004 11:15:00 PM 1 comments


Wow, it's amazing how fast things go up or down in the NICU, isn't it? I remember those days, especially the time when being discharged was discussed. HAPPY DAYS!!!!

I'll continue praying. =)

Note: Giovanni will be 1 years old on the 11th (8 1/2 months adjusted)!!! It's been a looooong year but now, you'd never know Gio was a micro-preemie.

Brittany from Florida

By Anonymous Anonymous, at 8:12 AM  

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"it is hard to be brave," said piglet, sniffing slightly, "when you're only a Very Small Animal." rabbit, who had begun to write very busily, looked up and said: "it is because you are a very small animal that you will be Useful in the adventure before us."

the complete tales & poems of winnie the pooh

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this site chronicles the continuing adventures of my son, odin, who was unexpectedly born on the fourth of july at 25 weeks gestation, weighing 1 pound 7 ounces.

he's quite a fighter and you can always send him a postcard to the most current address listed here if you're inspired by his adventures. see the postcard project/google maps mashup to see a map of the postcards.

if you're new, you can browse the archives to catch up. and don't forget to watch a few movies that i made while we were in the neonatal intensive care unit. or if you want the abridged version and you can find a copy, you can read about his adventures in the november 2005 issue of parents magazine.

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