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the eric update - day 466: media matters.

our complimentary copies of parents magazine finally arrived so we finally got a chance to see the article without needing to run out and interact with hoi polloi at out local big box bookstore :-) overall we're fairly happy with the finished "product" and i don't regret the decision to let odin's story reach millions of people who might not have otherwise had a chance to learn about our miracle boy or spent much time thinking about the rollercoaster that any nicu parent must ride.

that said, the timing of the article going to print coincides with a particularly rough couple of weeks on a preemie email discussion group that i frequent that has flooded my inbox with a seemingly endless series of heartwrenching stories from parents who are having to make impossibly difficult decisions - life and death decisions - because their rollercoaster ride is turning out much more differently than our own.

i guess we're feeling a feeling that's similar to when we felt guiltish while in the nicu - extremely grateful for how fortunate we've been and yet quite sensitive to not wanting to seem as if we're helping contribute to the popular myths that there's always a happy ending, or that coming home is even really the end - in many ways its just the beginning - or that technology can save every baby.

but maybe i'm not making much sense :-) in anycase we're happy to see that at the end of the article they mention that november is prematurity awareness month and maybe - just maybe - a few readers of the article will take the next step and contribute to the march of dimes which funds the research that saves lives.

oh, and speaking of media matters - "hallo!" to all the blogging baby readers who haven't visited in awhile :-)

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10/13/2005 10:40:00 PM 1 comments


Congrats again on being featured.

While I can imagine your feelings of guilt. I think maybe other parents hearing Odin's story can borrow some hope from him. And even if they don't end up with a happy ending, that hope that they borrow for a moment may allow them to get through one more day in the nicu. I think that is a priceless gift.

By Anonymous Anonymous, at 12:19 AM  

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[ rhetoric ]

"it is hard to be brave," said piglet, sniffing slightly, "when you're only a Very Small Animal." rabbit, who had begun to write very busily, looked up and said: "it is because you are a very small animal that you will be Useful in the adventure before us."

the complete tales & poems of winnie the pooh

[ about ]

this site chronicles the continuing adventures of my son, odin, who was unexpectedly born on the fourth of july at 25 weeks gestation, weighing 1 pound 7 ounces.

he's quite a fighter and you can always send him a postcard to the most current address listed here if you're inspired by his adventures. see the postcard project/google maps mashup to see a map of the postcards.

if you're new, you can browse the archives to catch up. and don't forget to watch a few movies that i made while we were in the neonatal intensive care unit. or if you want the abridged version and you can find a copy, you can read about his adventures in the november 2005 issue of parents magazine.

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